Challenges and opportunities in patients with adult congenital heart disease, a narrative review
Frontiers in Cardiovascular Medicine
MAY 30, 2024
Adult congenital heart disease Pregnancy Transition of care Challenges heart failure.
Adults with congenital heart disease faced higher risk of abnormal heart rhythms
American Heart News - Heart News
APRIL 17, 2024
Research Highlights: Almost 1 in 5 adults with congenital heart disease living in Israel had or developed an abnormal heart rhythm over five years. Adults with congenital heart disease who developed an irregular heart rhythm in the heart’s upper.
Latest research redefines neurodevelopmental risks, outcomes for congenital heart disease
American Heart News - Heart News
FEBRUARY 22, 2024
Statement Highlights: A new American Heart Association scientific statement updates more than a decade of research identifying, managing and preventing neurodevelopmental delays and disorders among people with congenital heart disease.
Heart organoids simulate pregestational diabetes-induced congenital heart disease
Science Daily - Heart Disease
FEBRUARY 8, 2024
An advanced human heart organoid system can be used to model embryonic heart development under pregestational diabetes-like conditions, researchers report. The organoids recapitulate hallmarks of pregestational diabetes-induced congenital heart disease found in mice and humans.
Wearable Biosensors for Congenital Heart Disease: Key Points
American College of Cardiology
MAY 23, 2024
The following are key points to remember from a science advisory on advancing wearable biosensors for patients with congenital heart disease.
Placenta Issues Linked to Newborns' Brain Aberrations in Congenital Heart Disease
Med Page Today
MARCH 1, 2024
(MedPage Today) -- Among babies with severe congenital heart disease (CHD), neurological abnormalities tended to cluster in those who had been exposed to some placental pathology while still in the womb, a single-center prospective study found.
Exercise and Sports Participation in Complex Congenital Heart Disease in Teenagers and Adults
American College of Cardiology
MARCH 19, 2024
Developments in cardiovascular (CV) surgery and related care have led to the improved survival of patients with congenital heart disease (CHD) and more teenagers and adults living with congenital heart disease (ACHD).
ACC CardiaCast’s PulseCheck: Congenital Heart Disease
American College of Cardiology
MARCH 25, 2024
In this panel discussion, host Andrea Price MS, AACC brings together Tricia Keegan, NP, DNP, FACC, Disty Pearson, PA-C, AACC, and Bailey Estes MSN, AGNP-C, to explore best practices related to structural heart disease. In this episode, the focus is on congenital heart disease.
Progress in genetic testing in congenital heart disease
Medical Xpress - Cardiology
MAY 16, 2024
Congenital heart disease (CHD) includes a variety of structural malformations affecting the heart and blood vessels. With growing understanding of the molecular processes involved in heart development, genetic variants have been proven to play a crucial role in the development of CHD.
Atrial Fibrillation Ablation in Congenital Heart Disease: Therapeutic Challenges and Future Perspectives
Journal of the American Heart Association
JANUARY 9, 2024
Journal of the American Heart Association, Ahead of Print. The increasing prevalence of atrial fibrillation (AF) in adults with congenital heart disease raises significant questions regarding its management. Emerging imaging modalities and ablation techniques might have a role to play.
Neurodevelopmental Outcomes in Congenital Heart Disease: Key Points
American College of Cardiology
MARCH 11, 2024
The following are key points to remember from an American Heart Association Scientific Statement on neurodevelopmental outcomes for individuals with congenital heart disease, which includes updates in neuroprotection, risk-stratification, evaluation, and management.
Sports With Congenital Heart Disease Guideline Comparison: Key Points
American College of Cardiology
FEBRUARY 15, 2024
The following are key points to remember from a guideline comparison on participation in competitive sports by patients with congenital heart disease.
Congenital Heart Disease: the poor cousin of childhood diagnoses?
Heart Sisters
OCTOBER 22, 2023
Many adults born with congenital heart disease have never met anyone else with a similar condition - which is where patient support organizations shine!
Evaluation and Management of Chronic Heart Failure in Children and Adolescents With Congenital Heart Disease: A Scientific Statement From the American Heart Association
Circulation
MAY 29, 2024
With continued medical and surgical advancements, most children and adolescents with congenital heart disease are expected to survive to adulthood. Circulation, Ahead of Print.
Applications of artificial intelligence-powered prenatal diagnosis for congenital heart disease
Frontiers in Cardiovascular Medicine
APRIL 23, 2024
Due to the challenges posed by the unique group of fetuses and the dynamic organ of the heart, research into the application of AI in the prenatal diagnosis of congenital heart disease (CHD) is particularly active.
CHD-CXR: a de-identified publicly available dataset of chest x-ray for congenital heart disease
Frontiers in Cardiovascular Medicine
APRIL 7, 2024
Congenital heart disease is a prevalent birth defect, accounting for approximately one-third of major birth defects. In response, we have released a dataset containing 828 DICOM chest x-ray files from children with diagnosed congenital heart disease, alongside corresponding cardiac ultrasound reports.
From the Member Sections | Navigating the Future: Congenital Heart Disease Care From Childhood to Adulthood
American College of Cardiology
FEBRUARY 2, 2024
February marks Congenital Heart Defect Awareness Week, an opportunity to reflect on the remarkable advancements in the care for congenital heart disease (CHD). Historically viewed with a grim outlook, CHD has journeyed from a potentially lethal condition to a chronic disease managed into adulthood.
Anxiety and Depression in Adults With Congenital Heart Disease
American College of Cardiology
JANUARY 19, 2024
What is the prevalence of elevated levels of anxiety and depression in adults with congenital heart disease (ACHD)?
Neurodevelopmental Outcomes for Individuals With Congenital Heart Disease: Updates in Neuroprotection, Risk-Stratification, Evaluation, and Management: A Scientific Statement From the American Heart Association
Circulation
FEBRUARY 22, 2024
Over the past decade, new research has advanced scientific knowledge of neurodevelopmental trajectories, factors that increase neurodevelopmental risk, and neuroprotective strategies for individuals with congenital heart disease.
Pushing Boundaries with Adult Congenital Heart Disease: Chris’ Story
Conquering CHD
JANUARY 16, 2024
This was a bold move at the time, when most patients with his congenital heart condition — dextro-transposition of the great arteries, or d-TGA — were advised to avoid exercise and strenuous activity. Watch Chris’ story *This blog post is sponsored by the Heart Institute at Children’s Hospital Colorado.
Determinants of survival following heart transplantation in adults with congenital heart disease
Journal of Cardiothoracic Surgery
FEBRUARY 9, 2024
Adult patients surviving with congenital heart disease (ACHD) is growing. We examine the factors associated with heart transplant outcomes in this challenging population with complex anatomy requiring redo-sur.
Clinical risk associated with COVID-19 among 86000 patients with congenital heart disease
Open Heart
DECEMBER 14, 2023
Objective To determine the magnitude of any excess risk of mortality and hospitalisation due to COVID-19 infection in patients with congenital heart disease (CHD) in the UK healthcare system.
COVID-19 
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Atlantic Health System’s Morristown Medical Center and NYU Langone Health Expand Partnership to Include Adult Congenital Heart Disease
DAIC
MARCH 13, 2024
New Jersey-based Atlantic Health System’s Morristown Medical Center and New York-based NYU Langone Health, both nationally recognized cardiovascular programs, have announced that they are expanding their partnership to provide patients improved access to adult congenital heart disease services and the specialist directed care.
PE-482887-004 LEFT BUNDLE AREA PACING IN PATIENTS WITH SIGNIFICANT CONGENITAL HEART DISEASE
HeartRhythm
APRIL 30, 2024
Left bundle area pacing (LBAP) is a popular technique in patients with structurally normal hearts that appears to decrease the risk for dyssynchrony associated cardiac dysfunction. Data on patients with significant congenital heart disease (CHD) is limited.
Advancing Wearable Biosensors for Congenital Heart Disease: Patient and Clinician Perspectives: A Science Advisory From the American Heart Association
Circulation
MARCH 28, 2024
Wearable biosensors (wearables) enable continual, noninvasive physiologic and behavioral monitoring at home for those with pediatric or congenital heart disease. Challenges related to the use of wearables are common to every clinical setting, but specific topics for consideration in congenital heart disease are highlighted.
Mortality, morbidity increased with heart failure hospitalization in adults with congenital heart disease
Medical Xpress - Cardiology
JANUARY 1, 2024
For adults with congenital heart disease (ACHD), those with heart failure (HF) hospitalizations have an increased risk for mortality and morbidity, according to a study published in the Dec. 5 issue of the Journal of the American Heart Association.
PO-01-044 ARRHYTHMIA OCCURENCE AFTER TRANSCATHETER PULMONARY VALVE REPLACEMENT IN CONGENITAL HEART DISEASE PATIENTS
HeartRhythm
APRIL 30, 2024
Transcatheter pulmonary valve replacement (TPVR) has become a safe and effective alternative to surgical PVR in tetralogy of Fallot (TOF), isolated pulmonary stenosis (PS), and other congenital heart disease (CHD) variants.
Congenital heart disease research landscape in the Arab world: a 25-year bibliometric review
Frontiers in Cardiovascular Medicine
JANUARY 10, 2024
Background While research on congenital heart disease has been extensively conducted worldwide, comprehensive studies from developing countries and the Arab world remain scarce. Aim This study aims to perform a bibliometric review of research on congenital heart disease in the Arab world from 1997 to 2022.
Latest research redefines neurodevelopmental risks, outcomes for congenital heart disease
Medical Xpress - Cardiology
FEBRUARY 22, 2024
More than a decade of new knowledge about neurodevelopmental risk in people with congenital heart disease has changed the thinking about who is most at risk and the factors that impact neurological development, learning, emotions and behaviors, according to a new American Heart Association statement published in Circulation.
Placental Pathology Contributes to Impaired Volumetric Brain Development in Neonates With Congenital Heart Disease
Journal of the American Heart Association
FEBRUARY 29, 2024
BackgroundNeonates with congenital heart disease are at risk for impaired brain development in utero, predisposing children to postnatal brain injury and adverse long‐term neurodevelopmental outcomes. We applied a placental pathology severity score to relate placental abnormalities to neurological outcome.
PO-05-071 CHALLENGING TRANSVENOUS CARDIAC RESYNCHRONIZATION PACING THERAPY FOR AN ADULT PATIENT WITH SURGICALLY CORRECTED CONGENITAL HEART DISEASE
HeartRhythm
APRIL 30, 2024
Cardiac resynchronization therapy (CRT) may help stabilize patients with heart failure. However, its implantation in adult congenital heart disease (ACHD) patients with surgical correction might be challenging.
Time to childbirth and assisted reproductive treatment in women with congenital heart disease
Open Heart
MARCH 13, 2024
Objective To investigate the time to first childbirth and to compare the prevalence of assisted reproductive treatment (ART) in women with congenital heart disease (CHD) compared with women without CHD.
PE-482890-003 OUTCOMES OF CATHETER ABLATION FOR ATRIAL TACHYARRHYTHMIAS IN CONGENITAL HEART DISEASE: AN ANALYSIS OF THE IMPACT REGISTRY®
HeartRhythm
APRIL 30, 2024
Outcomes data of catheter ablation (CA) for atrial tachyarrhythmias (AT) in the congenital heart disease (CHD) population are largely drawn from single center studies.
9 Things to Monitor When Taking Medication for Congenital Heart Disease (CHD)
Conquering CHD
JULY 11, 2023
Blood Pressure Many medications used to treat congenital heart disease can affect blood pressure levels. Electrolyte levels Certain medications used to treat congenital heart disease can affect the levels of electrolytes in your body, such as potassium, sodium, and magnesium.
Medications for Congenital Heart Disease: What Every Parent Should Know
Conquering CHD
JUNE 20, 2023
Congenital heart disease is a daunting diagnosis for any parent. We’ll cover common types of medications used to treat congenital heart disease, what parents should know about their use, and potential side effects to watch out for. Be sure to talk to your doctor if you have any questions or concerns.
Mental Health Screening in Congenital Heart Disease: A Call For Inclusion as Standard of Care
American College of Cardiology
FEBRUARY 27, 2024
The prevalence of depression and anxiety among adults with congenital heart disease (ACHD) is estimated to be similar to those with acquired cardiovascular disease when using structured clinical interviews.
PO-01-036 ACCURACY OF FORWARD-SOLUTION COMPUTATIONAL ECG MAPPING FOR VENTRICULAR ARRHYTHMIAS IN PATIENTS WITH ADULT CONGENITAL HEART DISEASE
HeartRhythm
APRIL 30, 2024
Patients with adult congenital heart disease (ACHD) such as Tetralogy of Fallot (ToF) are at high risk for ventricular arrhythmias requiring ablation. Less common syndromes such as double outlet right ventricle (DORV) and Williams Syndrome provide additional complications.
Raising the bar: triple therapy for pulmonary arterial hypertension associated with congenital heart disease
Heart BMJ
FEBRUARY 12, 2024
Pulmonary arterial hypertension related to congenital heart disease as a paradigm of complexity Pulmonary arterial hypertension related to congenital heart disease (PAH-CHD) really represents a paradigm of complexity.
Cardiovascular events more than 6 months after pregnancy in patients with congenital heart disease
Open Heart
SEPTEMBER 13, 2023
Objectives Patients with congenital heart disease (CHD) are increasingly pursuing pregnancy, highlighting the need for data on late cardiovascular events (more than 6 months after delivery).
The mechanics of congenital heart disease: from a morphological trait to the functional echocardiographic evaluation
Frontiers in Cardiovascular Medicine
APRIL 7, 2024
Advances in pediatric cardiac surgery have resulted in a recent growing epidemic of children and young adults with congenital heart diseases (CHDs). In these patients, congenital defects themselves, surgical operations and remaining lesions may alter cardiac anatomy and impact the mechanical performance of both ventricles.
Adult congenital heart disease training in Europe: current status, disparities and potential solutions
Open Heart
DECEMBER 14, 2023
Objectives This study aimed to determine the status of training of adult congenital heart disease (ACHD) cardiologists in Europe. Methods A questionnaire was sent to ACHD cardiologists from 34 European countries. Results Representatives from 31 of 34 countries (91%) responded.
Collection of a few ECGs in congenital heart diseases
All About Cardiovascular System and Disorders
FEBRUARY 14, 2024
All these features together in a cyanotic congenital heart disease is characteristic of tricuspid atresia. In true left atrial overload the atrial intrinsicoid deflection is more slanting so that the negative component of the P wave is almost U shaped rather than the V shape in this case.
Adults with congenital heart disease faced higher risk of abnormal heart rhythms
Science Daily - Heart Disease
APRIL 17, 2024
Adults with congenital heart defects were more likely to experience an abnormal, irregular heartbeat, finds a new study.
Clinical implications of respiratory ciliary dysfunction in heterotaxy patients with congenital heart disease: elevated risk of postoperative airway complications
Frontiers in Cardiovascular Medicine
JANUARY 14, 2024
Objective Cardiac surgery in Congenital Heart Disease-Heterotaxy (CHD-HTX) patients often leads to increased postoperative airway complications. Abnormal respiratory ciliary function, resembling primary ciliary dyskinesia, has been observed.
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